At 9:30 last night, I found out my adoptive mother, Kat, was diagnosed with Motor Neurone Disease – Rapidly Progressive Bulbar Palsy.
Her speech has been faltering the past 2 years. In the beginning, it was thought the cause of her speech difficulties was old denture work, and once it was replaced, the speech would mend.
That hasn’t been the case.
I tried to be brave. To mirror her positive attitude. I ended up sobbing. She comforted me, like mothers do. The irony of me getting the comfort in this situation doesn’t escape me.
The blessing she brought into my life as a young woman. The continued guidance she has provided through the ups and downs life has thrown at me. The thought of loosing her turned my cries into breath stealing sobs.
I can hardly bear it.
So sorry about this terrible news, Miss Lou. I hope your ma is able to find some comfort in her care and your love. xxoo
Sorry to know this Lou. May God bless you with the strength to bear the testing times.
Thanks so much rupesh. xx
I’m so sorry to hear your news. As someone who has lost both in laws in the last two years I’d say make the most of the time you have. Make the best memories you can. They will help.
Thank you for your kind words Marie xx
Well, for one, sorry I picked this time to come back to see how you doing…
For two, happy to have found you again
For three… Good Gawd. I do feel some… words fail… I am not good at words.
If I could pray, I’d pray for you and your family. Suffice it to say, I am thinking good things.
Always good things.
Thanks so much Lance. ML xx
((Hugs)) to you and your family.
Thanks so much x
I’m very sorry to read this news; thank you for having the courage to share what you’re going through. I will keep you, your mother and your loved ones in my thoughts.
Thank you so much for your kind thoughts and words Faith.
I am so sorry to hear about her diagnosis. Sending you and her strength and love during this battle ((hugs)) ❤
Thanks so much for your kind words. Xx
I’m sorry to read such sad news. I’m sure the shock will take a while to wear off. Sending thoughts and prayers for you all as you navigate the precious moments ahead.
I am very sorry to hear this. Do make every moment count and enjoy the time she has left. I pray the Lord grant you both great comfort and peace. Blessings, Natalie 🙂 ❤
Thank you for your kind words Natalie. Sadly I live in another state, though thankfully we have the internet & phone calls and text messages and email. I’m going to book in to visit in October.
This saddens me greatly. I’m so sorry to hear this and my thoughts are with you.
Thanks for your kind words Jeff.
Oh, Lou, I’m so sorry for both of you. It’s an odd thing but when you are the one with the illness, the responsibility to comfort others is often part of the experience. When I had breast cancer four years ago, I found I really needed to be strong for our daughter, but of course I had some tears of my own. The shock and the fear is something to be felt, but then to put in its place so that you can take things one day at a time. My thoughts are with you. xx
Thank you Ardys. When I asked about crying herself, she said she had the opportunity to have a poor me, why, massive cries and that now was time to move forward and live each day to it’s best.
Kat has a wonderful immediate & extended family, and she lives in Adelaide right around the corner from her sis which is a huge blessing as they are the best of friends.
Thanks for the kind words.
Precious Lou, my heart breaks and cries for you and your mom. You are both prayed for and so dearly loved. Let the love of Jesus and all of us carry you through. In abundant love, Deborah
Yes. Thanks so much for your kind words.
The news is terrible Lou. I’m very sorry. But, t least she hasn’t gone yet and you’ve time to adjust slightly to the idea of being the supportive one as things become more difficult for her. Your job will be to make sure there’s love and support with her every moment and that there is some support in place for you when your mum passes.Things will become so intense that you’ll need it.
xxx Huge Hugs xxx
Thanks so much for your kind and thoughtful words David xox. Her wonderful daughter and son-in-law are taking her away on a wonderful holiday – it’s a surprise destination. I spoke to her on the phone last night and have looked at booking in tickets to fly for a visit in October. Just waiting for confirmation on the dates.
My sympathy both for you and her during this trying time.
Thanks so much for your kind words!
You are most welcome.
Stay strong! So sorry to hear and we shall be praying for you and your family!
Thanks so much for your kind words.
So very sorry, and I hear you loud and clear. When my father was diagnosed with ALS, which is also a motor neuron disease, we were devastated. We lost him in 2003. Hugs.
So sorry for your loss Jennifer. Thanks for your kind words.
I am sorry to hear your news. keeping you and your mother in my thoughts and prayers. I assure you that you will find the strength to deal with this. Keep positive and maintain that smile for your mom. Brightest Blessings.
Thanks so much for your kind words William.
Oh my gosh that is heart wrenching. My love goes out to you across this big old globe. Warm Hugs 😦
*Huggles* Thank you Maesha, for your kind words. xx
I love the word Huggles. x
So sad to hear this. As I type, I’ve just come home from our friend’s place. He has MND, and it’s now 7 years since diagnosis, (his MND type is ALS) and although things aren’t great, and he can no longer speak, we’re all still able to take the time to enjoy whatever time there still is.
I know that’s not very comforting right now, particularly with the bulbar form your Mum has, but please know that you’re not alone, and that all of us who have friends and family with MND feel your pain intimately and intensely. You’re in my prayers.
Thank you so much for taking the time to comment & share your personal experience with MND Leonie. xx
I’ve not been very active at all in my blog recently as I’ve been so busy, though I’ve been so terribly desperate for an outlet that won’t always be tears on the other end of the phone with her. I also feel guilty, yearning for comfort, my heart’s breaking. I’m not the sick one.
All the opportunities to connect more in recent years I’ve pushed aside to go about busy life. Ugh.
The words from the song by Meghan Train or & John Legend; ‘I’m going to love you, like I’m going to loose you’ ring so true.
Treasure every minute.
So very sorry about your sad news. HUGS to you and your family.
Thanks so much for you kind words. xx
I’m so sorry to hear This Lou, for you and you’re mum. Not sure what to say other than big big hugs to you
Thank you for your kind words Dave. xx
And more hugs for you Lou I’m always here for you and lots of love xxx
Always here for you Lou xxx
Hi Lou, so sorry to hear about this. Its to be a tough time for you. I am sure you will be strong and will be there for your adoptive mother. Sometimes your presence is enough to give solace to those around you. Take care.
Thank you so much for your comforting words. xox
It is not something to be easily borne. Massive hugs. I trust in the great love for your adoptive mother which will bear you through this time.
*Huggles* Thank you xox
Oh, I haven’t been in contact for so long I had forgotten your wonderful huggles. Huggles right back at you.
You will be strong for each other. Love does that.
Prayers for your mother and your family.
Thank you for your prayers gilhooley.
I am so sorry to hear this news. There are just no words. We will keep you both in our thoughts and prayers.
😦 Thank you for for your thoughts and prayers Dan & family. Xx
I am sorry to hear that. You are in my thoughts. Try and make the most of your time together. Make these great and special times. Thinking of you.
Thank you very much for your kind words. Xx